My experience with Fibromyalgia



So in my last video I briefly discussed cerebral palsy, and now I’d like to talk about my second disability fibromyalgia because for whatever reason life decided to bestow another gift upon me. Aw, for me thanks wait this isn’t another… what’s this!? I don’t want it! I’m still trying to get rid of the last one you gave me. Take it back! I guess I have two disabilities now. Maybe I can re-gift gift one of them or something. Anyway, fibromyalgia is considered to be an invisible disability meaning you can’t tell someone has it by just looking at him with her. But believe me, that person does feel it. Seriously if someone were to ask me to describe fibromyalgia in one word, I’d say pain, but I’ll get back to that in a second. Unlike my cerebral palsy, I was not born with fibromyalgia. I didn’t realize it at the time, but the symptoms started near the end of high school a few years ago.

I’d lay down at the end of the day, and my feet would be in throbbing pain as if I’ve been walking all day. Apparently I’m not the type of person who spends a lot of time on her feet, so this was unusual. Over time, both my legs and feet starting to hurt more and more often. At first, I thought it might be cerebral palsy related since I have some mild pain due to muscle spasticity, but things quickly went downhill from there. I started relying on my chair more and more due to an increase in falls. This was more than typical spasticity, and this was my muscles giving out altogether. It was as if my legs went completely on strike. I can still walk some, but my already limited mobility was extra limited.

To make matters worse, the pain was spreading and becoming increasingly intense. Then the nightmares came. You know how sounds can affect a person’s dream? Well, imagine what random sharp stabbing pain can do. Upon having dreams of being attacked by animals with sharp teeth and claws or sometimes being repeatedly stabbed with swords, I’d wake up from the dreams in horrible pain almost feeling as if the dream had happened. Needless to say, I was panicked! Having no idea what was wrong with me or how much it was going to progress, my parents took me to different doctors trying to find answers. We did not try akupunktur.

However, I felt as if the majority of the doctors didn’t take me seriously and didn’t try very hard to find out what was wrong. One doctor in particular ticked me off, but I’ll save that for a later video. The few prescribed medications I did try didn’t help the pain. In fact, one medication, in particular, made the whole situation worse. Finally a little less than a year ago, a doctor mentioned fibromyalgia. It took about five years to find out what was wrong with me, but now I had a diagnosis to work with. Fibromyalgia pain can vary from a dull ache or tingling sensation to a sharp stabbing or shooting pain anywhere in my body.

One morning here recently I was awoken at a.m. to a friendly wake-up call of a sensation of being stabbed in the gut. The pain initially started below my rib cage and shot straight at my chest. Not being fully awake, I began to fall back asleep when it happened again. Ooof, okay okay I’m awake. That was the height of my pain for the day, but some days the pain stays with me the entire day.

I still feel like I can’t accurately describe how random the pain is. I mean you know your nervous system is glitched when one day you feel like something is trying to eat your face, and the next day you feel a mild ache in your right arm. It feels as if wherever I have nerves, I can have pain. Even my teeth can hurt to the point where I dread brushing. I’ve never had a cavity. In addition to phantom cavities, apparently, fibromyalgia patients can experience phantom heart attacks due to a condition called costochondritis. Costochondritis causes pain around the ribcage due to an inflammation of the cartilage. This can create a quick jabbing sensation in the chest area mimicking the sensation of a heart attack. I figured if I ever have an actual heart attack in my old age, I’ll sort of peacefully die from it without realizing what’s happening. Wait what? Oh, that one must have been real… Freedom! Whoo! I have only experienced this phantom heart attack a couple of times, so it hasn’t been a huge problem.

Usually, my costochondritis flares up, it feels like something gently squeezing my heart. So far there is no cure for fibromyalgia, but with the power of the Internet, I was able to research the condition and find ways to combat it. There is a link between inflammation and fibromyalgia. Therefore proper diet can make a difference. By cutting out certain foods, I’ve been able to control the pain better. I have by no means erased my fibromyalgia symptoms and can still have severe pain flare-ups on with pretty awful fatigue. I usually have some form of pain 24/7, but it’s usually just mildly uncomfortable versus the paralyzing levels that can reach. I also want to make a separate video about diet, so I go into detail later on. Well, that wraps up this video. Thanks for taking the time to watch that video, guys. Do any of you suffer from chronic pain? Leave a comment in the section below and share some things that help you. And if you enjoyed this video, please click the subscribe button to keep up with my future videos.

See you guys later! And remember, always be sure to show a little kindness to others.